Then main paragraph that stuck out for me was this:
"It became clear that the children in the optimal outcome group - the ones who no longer had recognisable signs of autism - had had milder social deficits than the high-functioning autism group in early childhood, although they did have other autism symptoms, like repetitive behaviours and communication problems, that were as severe"
For me it is glaringly obvious. The reason that this group of people no longer had some of the recognisable signs of autism is that they had been supported, and helped, and taught how to deal with everyday life so that they could live independently. They have been taught how to act in certain social situations. They have been taught how to copy behaviours that don't come naturally to them. The study acknowledges that their other difficulties were just as severe.
I will use my son as an example, even though he is only 9, that illustrates how (with the correct support) someone on the spectrum can be taught how to do things that may not come naturally to them, or that they may not be able to do otherwise.
A few months ago, if I had asked J to go and clean his teeth, he would go upstairs, clean them for a few seconds, and then in his opinion that was job done. He had cleaned his teeth. But I knew that he hadn't cleaned them properly. Unless I stood over him, telling him which teeth to clean and for how long, then he wouldn't be able to do it properly. Then his Autism Outreach worker made this chart for him:
In a few weeks he has gone from needing to be reminded to clean his teeth, and being supervised while doing it, to independently going to get his chart every morning and evening, timing himself cleaning his teeth on each section of the chart, and doing it perfectly. This is a small example of how someone on the spectrum can be taught a life skill, can be taught to be independent. He may memorise all the steps and be able to do it without needing the chart at some point. He may still use it as an adult, and go to work with no one knowing that he uses a chart to help him to clean his teeth correctly every morning and evening. Either way it doesn't matter, the point is he has been taught how to do it. He hasn't grown out of it. He has been taught it and supported in his learning.
He hasn't grown out of it.
Autism is a lifelong disability, and he will need support, help and understanding throughout his life.

I can't believe people will believe that rubbish anyway. Children do not grow out of autism and if anyone believes they do, they need to have a word with themselves. Even so-called experts have no idea where autism comes from so how on earth can anyone say children grow out of it? What absolute, utter rubbish.
ReplyDeleteCJ x
Unfortunately they do believe it :( It was said to me only yesterday by someone who knows me very well and this would be the only thing we disagree on. It is also apparently grist to the mill of those who STILL say that autism is bad parenting (especially Daily Mail readers apparently, if you check the comments against their report on this study)
DeleteI can't stand the Daily Mail at the best of times. I went and read a couple of the comments then decided to leave them to it, and not let myself be upset by people who can't be bothered to find out the facts. They wouldn't listen to a reason arguement anyway. This kind of 'study' just gives those kind of people ammunition, and reason to blame autism on poor parenting. It makes it all even more of a battle than it already is :-(
DeleteHi , Maria from Sweden again, people just dont stop to surprise me....BUT I want to ask if its ok to copy the pictures, it might help my son too :-)// Maria
ReplyDeleteOf course :-) xx
DeleteJust idiots. You grow out of autism the same as you grow out of not being able to do complex mathematics. You don't grow out of it - you work at trying to cope with it. You learn what's the correct response and try to remember and apply it - and sometimes you get it spot on. Our girls from the age of 11 or 12 constantly ask for affirmation that what they are doing is okay and right and what should they say and what does it mean if someone else does or says this, that or the other. Of course with complex mathematics there is only ever right or wrong, never shades or different answers for different instances....far easier to teach and learn maths! :D
ReplyDeleteThis is a more measured interpretation.
ReplyDeletehttp://www.sciencedaily.com/releases/2013/01/130115101518.htm
I think it's important research that may shed more light on the nature of autism, although the Telegraph's interpretation of it may leave a little to be desired!
Will be interested to see the results of the brain imaging studies. Are there real brain changes or are these individuals just great at compensating, as the seems to be the consensus here? Some Early Start Denver Model research does suggest that intervention can bring about brain changes producing a more 'neurotypical brain'.
None of it is relevant to my beautiful boy, though. He remains firmly on the spectrum even though he improves every day.
Just read the article and in my opinion its another study that says nothing, ie the results suggest more research is needed to explain the findings. It seems that every tme a little bit of research is conducted it is shared throughout the media even though it tells us little. No wonder some people untouched by autism get the wrong message.
ReplyDeleteI couldn't even read it further than the headline. Thanks for writing this response!
ReplyDeleteI don't think it's totally unreasonable to think that some people, with the right support, might get to the point where their various deficits are no longer severe enough to be on The Spectrum. That's not to say that they won't still have some anxieties or find certain tasks or situations difficult.
ReplyDeleteI've seen my own child and the ASD children of friends make great strides, so actually I find the article quite heartening.
PS I would like the toothbrushing chart too
I saw that article and didn't read it. My son is only 3 1/2 and yes, ABA therapy is helping him to learn to recognize the need to communicate. It's helping him learn to focus when we need him to and to listen. But it's not "curing" him or changing the core of who he is. Sure, he's trying to say more words. But that doesn't mean that whatever it is about him that made the words stop coming a year and 1/2 ago is gone...it's just developing.
ReplyDeleteI think this is a great post and I really appreciate you writing it (mostly so I can now feel justified in not reading that dumb article).
You are absolutely right!!!! What a great post!!!
ReplyDeleteI'm an autistic adult, although very few people recognize it (I was a non-verbal headbanger as a kid, but decided when I was about 5 to put my energy into learning how to "do" the social thing). My psychiatrist has mentioned the idea that I "outgrew" my dx, but the truth is, I just learned to cope adequately. My sensory issues are still there, though admittedly less severe, and everything I do socially is still very conscious and deliberate. I love people, I feel deeply for others, and I even get complimented on my "people skills," but that doesn't change the fact that it's still incredibly challenging for me to "do" social situations because they take so much mental energy. My elder son, also on the spectrum, has been progressing the same way...and while I'm hopeful that he'll grow up to be a productive, independent young man, I also know that he'll remain autistic in his being.
ReplyDeleteIt's really good to hear your views - thanks very much for sharing.
DeleteYES! It is awesome that you recognize this and are willing to be the support (at least for now.) And I love the chart you posted too!
ReplyDeleteThanks to everyone for the lovely comments :-)
ReplyDeleteYou can get to the point of managing the disorder of Autism. My daughter "appears normal" most of the time. But behind the scenes is still a lot of work because
ReplyDelete* she still cannot eat dairy or gluten
* her brain only lets her sleep 4-6 hours a night
* her sensory issues can go off the meter
* routine and schedule are the foundation of our life
* etc, etc, etc
No, she has NOT "grown out" of Autism.
~ Jamie ( hopping over from Love That Max)
Would a part of me like to believe my daughter will 'grow out' of her autism? Sure. Do I ever think she will? Nope. But I hope as she matures, she will learn how to deal with different situations in the best possible way - but then that's a skill that lots of non-autistic adults don't have either (like half of the Dm readers perhaps?)...
ReplyDeleteHaha! Couldn't agree more about the DM!
DeleteMy adult autistic son has improved in many ways over the years, but it's a combination of what he has been taught and how we have learnt to deal with him. He's still autistic! It was a rubbish article and so many people will not bother to take in the facts that it was a tiny study and didn't actually prove anything. Very damaging in my opinion.
ReplyDeleteAlthough I have not read the article in question, I think it's important to remember that there is quite a wide spectrum of autism. Perhaps the word "outgrow" was a poor choice of words. For many on the spectrum, my son included, there have been significant improvements from dietary changes as well as other therapies. While he still has his quirks he is no where near where he used to be. And a lot of the symptoms that have improved are things that can't be learned to be managed (ie. aversion to touch, etc). I am hopeful that as more research is done significant strides will be made that will improve the lives of everyone on the spectrum. To learn more about the dietary changes we implemented with my son, see www.sharingmom.com I am adding more and more each week. Stay strong sisters. :)
ReplyDeleteI think they believe that the child will outgrow it because they can't step into the mind of the child and see that in fact they haven't grown out of it, they are just compensating. We as parents see the charts like the one you have shown and know for ourselves that they are compensating and "working through it". I think they mean well and want to give readers hope, but I think there is danger in posting an article to those who are ignorant to autism and then create a false hope that there child, their loved one, or whoever they may know having autism is one day going to rid themselves of it if they get the right help. And actually I don't know why this would be something to hope for anyway. I would never hope that Cali's autism goes away. It makes them in part who they are, makes them unique. Ill take the bad and the good that come with autism because it means geting to have Cali! Maybe we should inform them and have them write an modified extension to the story:)!!!
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can't agree more with this post as well. when my son was diagnosed, I knew already enough and saw this confirmed by my personal research that he would be on the spectrum 'for life'.
ReplyDeleteAs he is high functioning tho, and thankfully, circumstances have changed in schools here in Australia, I am very hopeful that with the right support at home and in school he will be able to learn social skills and improve his coping mechanisms like a foreign language and eventually, get by and hopefully find his place in society. I am not illusional about his condition being a handicap rather than a 'gift'. Yes, he has talents, but to profit from them, maybe for finding his professional vocation, he will have to work harder on things that come naturally to NTkids. Interpreting this process as 'outgrowning autism' (i had read another article on the same "research") is not helping the situation, as it may reverse the immense effort autism advocats have put into getting the right help in and out of school for their children to enable them to be integrated.