This week is half term for us, which means it is only one more half term until it is a year since J has been out of full time education.
He is a different little boy to the one that he was at Easter last year. He is happier, calmer, and much more able to cope with daily life. He copes well if I go out in the evening, which I wasn't able to do for a long time. I even stayed away overnight over Christmas and he coped brilliantly. My husband and I have booked tickets to go out to see Sean Lock in May, and he seems more excited about having Grandma to come and babysit than he is thinking about us both being out for the evening.
He loves his one to one lessons at school, and happily goes round school taking messages to different classrooms and teachers.
I do feel a bit in limbo though. We are waiting to see if he gets a statement, and if he does what it will provide. Until we have that I don't see that there is anyway of him having more than one hour at school per day, as there aren't the resources to provide it. And I think that him being able to cope in a classroom full of children is still probably a long way off. He has had a sensory profile done, and we are told that it brought up some significant results, specifically but not exclusively related to noise. This didn't really surprise me - a police car went passed with sirens blaring the other day and he said to me, "Mummy, that noise makes my ears hurt". Hopefully the recommendations from that will also help him in reintegrating back in to the classroom.
So back to the limbo part. From a selfish point of view, it's difficult some days. We spend most of our day walking to and from school (morning drop off for G and E, taking J to his lesson, picking him up again, then afternoon school run). There literally aren't enough hours in the day with that, and with everything that being a mother of 4 requires! Even if he was just in school for a couple of hours I think it would make things a little bit easier and *whispers, I know this sounds even more selfish, but I may get a little tiny bit of time to myself*
Until the statement comes through we just need to keep plodding on.
Not selfish at all, would just put you on a level playing field with all the other parents whose children are being educated by the state (or privately!). It would seem like good news that he's happy with the school when he is there, so I'm hoping that that foot in the door can just be pushed further in. He should be getting the help he needs. Fingers crossed for the statement.
ReplyDeleteCertainly not selfish. I am so happy that M is now at school for 2 whole hours! And it will be slowly increasing. When our children are school age, if we aren't home edding then there is the expectation that there will be times without them, and personally I need that.
ReplyDeleteHe has come such a long way though. Am praying you get what you need to give him the support for longer school days. xx
It's so much more positive and uncluttered than when I first started reading your blog. You have direction and understanding and you know what you are aiming at. Your little man is coming on so well, and it's lovely that you are able to go out and hopefully you will get the well-deserved and hard-earned 'me time' soon x
ReplyDeleteThanks everyone :-) x
ReplyDeleteGood luck with it all. I hope things fall into place for you.
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